Monday, January 4, 2010

She's Swinging!


I almost forgot! To give Sophie a little variety, we figured out how to finagle her into her Indoor Rainy Day Playground swing. You can see from the photo that she loves it!


Much love!

Down to the Wire

This is it - the last 24 hours with the cast!! I can't believe that tomorrow is the big day.

This weekend has been fun. Thursday night, after Miles left, we rang in the New Year with a pizza supper and a viewing of Narnia. We counted down to 9, drank some sparkling pear juice and wrote our family resolutions in our family journal. We decided Sophie would want to work on her walking and drinking from a big-girl cup. Jack wanted a new house with "bigger bedrooms" while Susan advocated for more outside time for all and for our family to continue to be courageous and brave. I would like to start a family garden and purchase some family bikes with a seat or "chariot" for The B. I think these are doable for the year!

We continued our New Year's celebration with a late-afternoon matinee of "Alvin and the Chipmunks: The Squeakual" on Friday. What fun! Sophie was enthralled - she especially loves funnies where someone falls or gets hit on the head. "Alvin" was full of those! During the musical numbers, she and Jack danced in their seats. Overall, a good time was had by all!

Saturday, Sophie and Jack went to Chris' house for the morning while I ran my first 10K (!!). Poor Sophie, Jack, Chris and Charlotte - he had to pick them up at 6:45 so that I could make the start time. Needless to say, there was a sleepy Sophie at the Riverwalk address! I believe that she cuddled with Charlotte most of her time there. That afternoon, she was a bit cranky but we gave lots of cuddles and that seemed to assuage the crankiness. Yesterday, we spent the day at home and had lots of floor play and wallowing in the pillows. Today, we slept late and have, again, wallowed together. Sophie seems to prefer cuddling on these cold days - and I can't say I blame her!

Although her sleeping is a bit better, Sophie has taken to throwing full-out temper tantrums when she is bored or mad or just wants a change of scenery. Instead of speaking bat in cute little high-pitched squeals, she has turned to a caterwauling kitten sound that is a cross between a squawk and a scream. She makes the greatest "goat face" when she squawks and stiffens her body out - the better able to slide to the floor from whatever she happens to be sitting on. It's quite funny - and so age appropriate!

Tomorrow, our big appointment is at 9 a.m. We will get the casts off (yay!) and find out what's in store for recovery. Dr. Piehl should give us lots of information about what this will entail, when we can expect to resume PT, when she can begin weight-bearing, etc. I will update the blog tomorrow afternoon with the first part of the next leg of our journey!

Until then, much love.

Thursday, December 31, 2009

The Home Stretch!

Wow! I can't believe that we are six days away from getting the dreaded cast off! We're in the final stretch and here's what's been happening since the last post:

Sophie went to Chris' house to spend the two weeks prior to Christmas. It didn't take her long before she figured out how to slide out of her bed at night and into the middle of her room. The only problem was that her feet frequently got tangled in her covers which resulted in a squall in the middle of the night. She slept great for about the first two nights and then all bets were off once she found new mobility. Chris spent a great part of the nights up and down as she was sliding off the bed.

As if that weren't enough, Sophie B also figured out how to slide off the couch! Chris isn't exactly sure how she did it; however, when he went into the kitchen to put water on to boil, she was on the couch. When he popped back in the den to check on her, she was in the middle of the floor on her tummy, smiling up at him. This girl has got some great determination! She continued to flip herself off the couch for the rest of her time there.

Sophie spent much of her time at Chris' house with Mimi (Bonnie) and I am sure that she loved having that undivided Mimi time. Papa Taylor came down several times and, with his help, the gals were able to make shopping trips to the mall, Wal Mart and generally get out and about. Sophie started her homebound with Ms. Douglas at Chris' house as well. Ms. Douglas told Bonnie that one day, Sophie pointed to the correct photo 5 out of 5 times. Go SOPH!

Sophie came back to my house on Christmas day. Since she is definitely OVER her cast, we've been trying to give her at least a little entertainment each day. Christmas took care of itself; as did the day after since Cori, Neill, Joan, and Ben came to join Chi Chi, Poppa, Susan, Jack, Sophie, and me at the hacienda for a post-Christmas dinner. Sophie loved opening presents this year. She was a quick draw on the wrapping paper and was enjoying checking out what was inside. Her favorite toys so far seem to be the Crayola Glow Station, the Huggums doll (if it will replace Belle, how happy we will be!), Laurie Berkner/Jonas/Imagination Movers performance DVDs, and a book from Ms. Kaye (just received today) called My Pretty Pink Purse. I think that book about sums it up for the B!

Sunday (the 27th), we ventured to church for the first time. I think Soph was thrilled to get out and see all of her church-related constituents. Joan rode in the back with Soph and entertained her throughout the trip while Jack rode with Ben. Soph was great about cuddling on the "couch" (as Jack calls the pews) and loved all of the music (it was "Lessons and Carols" Sunday after all). When we got home, she was exhausted. In fact, we all took a nap!

Monday brought some Homebound from Ms. Douglas. Sophie B worked hard! She was so exhausted afterward that she fell asleep sitting up on the couch. Together, The B and Ms. Douglas worked on matching, orienting a book, pointing to pictures, identifying objects from their photos, coloring, stacking, putting together a puzzle, drinking from a big-girl cup, and putting objects in a container. They also used some signs and an Augmentative Communication Device to request snacks and drinks. She did fantastic! Jack was fascinated and wanted to help; we had to promise that he could watch part of it on Wednesday.

Tuesday, Sophie's big excitement was going for a walk with Susan. Susan bundled her up nice and tightly and they took the big loop around the block. I think they were both worn out from that one - in addition to the weight of her casts, her wheelchair is awkward and heavy! Jack and I also attempted to help her with some Homebound skills; however, we are definitely not as skilled as Ms. Douglas. I think Sophie saw us as the amatuers that we are a chose not to work. We had fun getting ready though! Jack was excited to be a helper.

Wednesday, Sophie had Homebound again, this time in the afternoon. Again, she was worn out. While Jack went for a date with Daddy, Sophie and Susan stayed home and had a date of dinner and a movie with some cuddles thrown in. Today, our big adventure has been a trip to McDonald's for lunch. Amazingly, the whole family (Sophie, Jack, Susan and me) fit in the car with our friend, Miles. Lunch was enjoyed by all and the boys played hard on the playground. We are now at home where Sophie is lounging by the fire, enjoying her new book from Ms. Kaye and a football game and waiting for Susan to finish the hot chocolate. I think that we may try to hit the movies tomorrow.

This is the life! Much love.

Wednesday, December 9, 2009

Movin' On Up!


Yes, that's right. . .we're making progress! Last night, Sophie went to sleep with only about 15 minutes of diva fuss beforehand. YAY!! She woke up this morning at 4:30, 5:30 and 6:30; however, unlike the screams of death that I would have heard for the past week or so, there were some whimpers which quickly stopped after the diaper was changed, sassy was replaced, or she was tucked back in. At 6:30, though, Jack was awake, too, and craved a cuddle with his sister; we did wake her up at that point. She may be tired today but - knock on wood - it looks like the worst is over!!!! Hallelujah!

Sophie had her follow up appointment with Dr. Piehl, our orthopaedist, yesterday and things are looking good. I posted her newest XRay above. If you look closely, you can see the pins on her left hip (Dear Reader, your right) that are holding the cadaver bone in place. Cool! Ultimately, we'll have to get those taken out; however, right now, things are looking really great. Her incision is healing nicely and we've decided to fore go the covering for now as long as she isn't picking at it. The incision site is quite large; Jack saw it this morning and thought it was "a bad boo boo." He wanted to know how long it would be around and we talked about the fact that Sophie would always have a scar. Hopefully it will fade some but at least it can be covered by a bathing suit in the summer. No cropped shirts for the B! : )
The D-Day for cast removal is January 5. Once she gets her cast off, Sophie will be able to go back to school with her regular wheelie. Yesterday, they trimmed the cast a little but last night it had already slipped down again. Who knew that a cast will slide down and move around as she wiggles?? I think at this rate, we're soon going to have the bar down at her ankles. . .or her feet will just slide right out. I think she'd be fine with that! She's so funny; she's now figured out how to make us laugh by lifting her right foot/leg up and waving it around. She thinks it's really hysterical. She did another Pilates move last night: "Rolling Like a Ball" was utilized so that she could continue holding on to her bar between casts as Mom made her quit sitting up and lie back on the pillows. She was thrilled with her brilliance. We all are!
Much love.

Monday, December 7, 2009

Two down; four to go!

We're at the two week mark. YAY!! Sophie B is doing well, although she's cranky as a hornet. Mom thinks she's bored, which she probably is. There's only so much you can do when you are lying on your back and I think she's tired of all of it. We try putting her on her side but - alas! - she scooches her hiney so that she's flat on her back. She did let me prop her up in the middle of the night last night. I think all that lying on her back finally got old. We've watched a TON of TV these past two weeks. I think Soph has probably seen every "iCarly," "Jonas," "Imagination Movers," and "Little Einstein" that has been created. We've moved on to some movies, which seem to help; she loves Beauty and the Beast and has enjoyed the Charlie Brown Christmas special.

We've started laying her flat on the floor and she seems to enjoy that. I think she feels like she has more freedom that way, even though she's limited to what's around her. We've given her some of Jack's toys from his room to make it seem more exciting and she does love that. (Gosh, Jack would die if he found out!) Wheeling her from place to place just isn't as cracked up as it used to be; she'd much rather sprawl out and let us come circulate around her head. She likes her people close to her.

One thing that seems to be getting The B down these days is her incision site. The site itself is okay; however, it's the dressing that's the problem. She managed to tear off tiny bits of the first three dressings that we put on and we are now down to medical tape and guaze. Susan did go on a quest today for the dressing that we got in the hospital as it seems to move more with her skin than the tape. Poor sweets; her skin is sooooo irritated from the tape. It's so fair and sensitive anyway that any kind of abrasion or irritation seems magnified a hundred-fold. Susan mentioned this morning that The B seemed to be squirmy in her wheelie and when sitting up this morning. I can't help but wonder if it's the tape.

We're still hanging on the Motrin. Sometimes, she doesn't seem to need it but I guess there are flare ups now and then. Susan actually went to get more on her quest for a wound covering today. At least we haven't backslid to the Tylenol with Codene. : )

Sleep is still. . .well. . .difficult. We've had trouble getting her down the past three nights, although it take less time each night. She has gotten used to being the principessa (as mentioned in an earlier post) and we're having some toddler boot-camp to get back into her routine. The other night, she woke at 4:30 a.m. I got her a snack, a drink, changed her diaper, put a sweater on her (in case she was cold), gave her Motrin for pain and Benadryl for sleep; in short, I couldn't figure out what else to do. We spent the next hour (4:45-5:45) with me stationed in the hallway listening for the fall of the sassy or the cup and her screaming her little lungs out. It's humorous really; it's something so typical that it makes me laugh. I am sure that if she could have stood up, she would have thrown herself on the floor in front of the door and drummed her heels and fists on the floor. I really had to laugh as I waited to rush back in, feeling like the King of Siam's servant as I averted my eyes from hers (thanks, SPY), and give her her sassy or cup back to encourage sleep. At 5:45, though, I decided to put her in bed with me where she promptly fell asleep. C'est la vie!

Even though she's been a little cranky, Sophie's still keeping us entertained, though! Susan and I did some singing for her yesterday and she actually danced a little - she got her hips hopping and her head bopping. It was nice to see. : ) Mom wants to paint her toenails but her little toes just keep moving and grooving underneath all that pink cast. I don't know how we're going to keep those piggies still!

Sophie has her first follow up with Dr. Piehl tomorrow morning at 8:45. Hopefully, he'll think she's doing as great as we do! If you have ideas about entertainment, please let us know! We'd love some suggestions! And, as always, feel free to become a "follower" or leave a comment. We'd love to hear from you and know that you're out there thinking about us! : )

Much love.

Thursday, December 3, 2009

Post-Thanksgiving Thankfulness

The B is well and kicking today! Well, not really kicking but she is moving and grooving. She had a wonderful day yesterday: her appetite improved, she was happy all day, she waved and beamed at me whe I got home after rehearsal. All-in-all, she is feeling better, I think . This morning, after some nighttime party time at 3 a.m. and a brief wake up at 7, she went back to sleep and slept until 10. 10!! Seems like old times. . .I tried to talk her into watching Pretty In Pink; however, we're now watching "Charlie and Lola" after she giggled through "Lazy Town." You can see who wears the pants (or the dress) lately in this house! : )

In reading through the last post, I don't want you, Dear Reader, to feel that I am somehow traumatized by The Soiffure's recent wakefulness. I'm not, really. It hearkens back to "the good old days" when we realized just what partying at midnight was really about. It's just been a while and I'm out of practice. So, in light of the recent Pity Party Post, I thought it would be nice to show a little post-Thanksgiving thankfulness this morning. Here are all the things I'm thankful for regarding The B:

The way she waves at me accross the room when I return from somewhere.
Her smile with her little gappy front teeth.
Her sassy personality.
The way she hugs soooo hard.
Her sparkly blue eyes, especially sparkly when she waves accross the room.
The way she lunges in for a kiss with her lips puckered then manages to sneak her tongue in against my cheek at the last minute.
The way she loves tights and fancy dresses and smiles so big when we call her "princess" or Jack tells her that she is beautiful.
The way she is smart, way smarter than all of us, about what's really important in this world.
Her unconditional love.

I'm sure that doesn't cover even half of it. . .but it's a start! Right now, I think the B is thankful that Lola is a diva, just like her. Actually, she may be taking notes on some things to add to her principessa repetoire.

Much love.

Wednesday, December 2, 2009

Fighting Sleep

Sophie B is back at it. . .fighting sleep. This is a monster that we haven't faced in quite a while. In fact, we routinely congratulate ourselves on our luck to have such a great-sleeping Angel. Well, it was nice.

Sophie has gotten quite used to being the principessa around the home; everyone caters to her on a regular basis and it has gotten kicked up a notch since the surgery. First, her schedule was disrupted by all of her "attendants" at the hospital. Once home, she got to sleep in Mommy's bed for the first week. Then she got to stay up late the first few nights followed by jaunts to crazy town after that. Her constituents have flocked to her side, day and night, to bring toys, food, drink and entertainment. In fact, Jack and Susan have been regularly constructing puppet shows for her pleasure (Brooke starred as Baby Jaguar in last night's). It takes 43 people to dress and bathe her and she is carried or wheeled from place to place. What's not to love?

The past few nights (and even sometimes during the day), she has turned into what I like to call The "My-Super-Sweet-Sixteen-As-Seven-Year-Old" Sophie - nothing suits her unless we are all as close as possible to her head. It really is sweet but when she is literally screaming from her bedroom because she's not entertained to sleep, it gets old. Normally, she would crawl out of bed and rearrange her drawers, unload her toy basket, and make her way to her door to knock until someone answers and puts her back to bed. Since she is stationary these days, the alternative is an awful, gut-wrenching scream that sounds like she is caught in the jaws of life. Luckily, when one checks on her, she is all smiles and wrapped up in bed just needing her Baby Belle back from where she has thrown her on the floor in an angry rage.

Hopefully, this is but a moment and our sweet, sleepy darling will be back soon. The melatonin has been purchased and started again; perhaps we will have a better night tonight. I can tell you, the screaming did stress out all the members of The B's constituency, including favored little brother; luckily it passed after 15 minutes or so and she slept until 7:30 this morning.

Love and sleep to all.